The following statements are a proposed change from the previous versions. We believe they offer a fresh approach to communicating what we do. We are keen to hear whether these statements match how you feel about SBHI. To feedback simply email:

Our purpose:

  • Our purpose is to be a powerful community, united by Spina Bifida and Hydrocephalus, and moving together towards fulfilled futures.

Our goal:

  • We aim to foster an environment in which every person affected by Spina Bifida and Hydrocephalus can lead a fulfilled life.

Our action:

  • We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus.

  • We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus.

  • We enable our members to get the very best from health, education, and social services.

  • We lobby the Government to significantly improve services and all necessary access for people living with disabilities.

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