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  • As you are all aware SBHI have lost one of our valued younger members recently. Jess was loved and will be missed by all. The SBHI Dublin Branch has contacted the SBHI Peer Support to organise and facilitate a group chat and get together where members affected by Jess's passing can discuss their feelings. Date and venue to be confirmed for January 2015.
  • The Spina Bifida research team in Temple Street Childrens University Hospital would like to thank all the parents and service providers who took part in the recent research study “Investigating the health and therapy needs of children with Spina Bifida”. Good news just announced last night indicates that the research findings and subsequent meetings with Department of Health and HSE officials has resulted in the HSE 2015 Service Plan stating in its service development section that it will “Improve services for paediatric spina bifida in the Children’s University Hospital” and has assigned €350k for Spina Bifida. This is great news for the future of Spina Bifida services and was only made possible by all of those who helped with completing this national study so thanks for all your help!!
  • Check out the new Autumn 2014 Ability Magazine
  • Interested in raising funds for SBHI? Why not try something different and Skydive for the cause!
  • AGM 2014
  • TEMPLE STREET RESEARCH; The Health & Therapy Needs of Children with Spina Bifida in Ireland

Welcome to SBHI

National Association for Spina Bifida and Hydrocephalus Ireland Ltd trading as Spina Bifida Hydrocephalus Ireland (SBHI)

SBHI, Spina Bifida Hydrocephalus Ireland was established in 1968 by a small group of parents whose children had Spina Bifida and/or Hydrocephalus. Today, SBHI has over 3 000 members and has branches in all four provinces, as well as a professionally run National Resource Centre based in Clondalkin, Dublin 22. Parents and individuals with the condition(s) continue to dedicate their time to the association and are now elected volunteers on our Board of Directors as well as being elected to Branch Committees nationally.

Text SBHI to 50300 to donate €2

Text SBHI to 50300 to donate €2

MISSION STATEMENT

The mission or purpose of Spina Bifida Hydrocephalus Ireland is to provide information, support and advice to people with Spina Bifida and/or Hydrocephalus, their parents and carers, as well as to promote social inclusion and equality for people with Spina Bifida and/or Hydrocephalus in Irish society.
Our vision is that people with Spina Bifida and/or Hydrocephalus will participate to their fullest potential in all aspects of life. We will:

  • - Provide information, support and advice to people with Spina Bifida and/or Hydrocephalus, and to their parents, siblings, and carers.
  • - Promote social inclusion and equality for people with Spina Bifida and/or Hydrocephalus in Irish society.
  • - Help our members to get the best from health, education and social services.
  • - Lobby the Government to improve services and access for the disabled.

We are serving for a society in which all people with disabilities are recognised for their strengths and are afforded a fair and equal opportunity to make the most of their lives. We aim to enable our members to achieve full participation in society.

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Cork, KerryMid-West Spina Bifida and Hydrocephalus AssociationSouth Tipperary, Waterford, Carlow, Wexford, KilkennyLongford, Westmeath, Offaly, LaoisWicklow, South DublinKildare, North DublinMonaghan, Cavan, Louth, Meath, North DublinShine - Northern IrelandDonegal, Leitrim, Sligo, Galway, Roscommon, Galway