info@sbhi.ie 
+353 (0)1 457 2329 
Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
We have loads of fundraisers, social nights, respites and events throughout the year. Check out some of our upcoming events here
SBHI is proud to be a campaign partner for this year's #GetRareAware campaign by Rare Diseases Ireland.
At 12.30pm on Thursday, 18th April 2024 they will be holding an online launch of the Get Rare Aware campaign for people living in HSE Dublin and Midlands. At the launch, you will hear from Vicky McGrath, CEO of Rare Diseases Ireland, and others on the importance of the newborn screening heel prick test for early diagnosis and treatment.
You can register for this event here:
www.eventbrite.ie/e/get-rare-aware-briefing-hse-dublin-and-midlands-health-region-tickets-8674197...
0 CommentsComment on Facebook
We had such fun today hosting our Sports Day! 🙌🏻
4 CommentsComment on Facebook
Well done to all. Great event for most.
Was there and had a great day. Thank You
Such a great day
JOIN TEAM SBHI!
Sign up today for the VHI Women's Mini Marathon Vhi Women's Mini Marathon and get a FREE TEAM SBHI T-shirt to wear on the day! 👕
How to sign up?
> Go to www.vhiwomensminimarathon.ie/
>Select whether you wish to run in Dublin, or virtually.
>Fill in your details
>Select the option to create a fundraising page and choose Spina Bifida Hydrocephalus Ireland from the dropdown
>Proceed to checkout
Once registered, please contact Noelle at njordan@sbhi.ie to arrange postage/collection of your free T-Shirt.
We hope to see you there! 😁
#vhiwmm #teamsbhi
0 CommentsComment on Facebook
We are heartbroken to share with you all of the passing of our Dear Friend Frankie.
Frankie was a lifelong best friend of Hellen Martin & Tiny and a beloved Member of the Open Opportunity Service.
Frankie was everyone’s friend, always smiling and helpful and had a heart of pure gold. Frankie had achieved so much during his time in the Day Service and was so so proud of these achievements. He was looking forward to all that was to come and was extremely happy. We take solace in this and in the beautiful memories that will stay with us forever. You will be missed everyday our Forever Friend❤️
31 CommentsComment on Facebook
I’m heartbroken to read of the passing of Frankie such a beautiful soul .. I loved our chats .. I’m so glad I hugged him the last time we met .. rest in peace you wonderful man 💕
Rest in peace Frankie 🙏You will be missed by all and will always be remembered for your friendship. From your little pal Roisin 😢❤
Fankie was a true Gentleman, always very happy and ready to help everyone. Rip😦
A message from Gerry Maguire, our Chief Executive Officer:
''The Easter break coincided with the clocks going forward to signal summertime. This is a rare enough event and this year made it feel like a new beginning, a chance to re-energise. This is what we are doing with our SBHI website. The website has looked a bit jaded over the last while and certainly in need of upgrading and updating. With that in mind, following a lot of work, especially by our Communications Officer Noelle, we are using this time of change of season to relaunch our much improved website. I would like as many of you as possible to visit the website and let us know your views on it. Like everything else in Spina Bifida Hydrocephalus Ireland, this website isn't the property of me or the staff, it is your website and therefore it is crucial that you are happy with it.''
Check out the new site at sbhi.ie 😃
0 CommentsComment on Facebook
Yesterday we were delighted to host a Wheelchair Skills Workshop provided by Go-Kids-Go in TUS Athlone who provided lunch for us. GoKidsGo provided extra wheelchairs for parents and siblings to get involved in testing out their wheelchair skills and were invited to take part in all aspects of the workshop.
The skills worked on through out the day included moving the wheelchair in different directions, getting over small bumps, popping wheelies, mounting kerbs of different heights, road safety and safety when using path ways beside a road, techniques for wheeling up a slope and down a slope, techniques for emergency evacuation when on the upper floor of a building, avoiding falling out of your wheelchair and what to do if you do fall out of your wheelchair.
This was broken up with games including wheelchair dancing and wheelchair basketball.
Roy from Go-Kids-Go offered lots of support to everyone participating to try out new skills/techniques safely and to build confidence.
5 CommentsComment on Facebook
Looks great fun wish I knew about it growing up Do you do 1 for adults in dublin
Great work everyone. 👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻 I remember our grandson doing the workshop
Thanks for organising a great day.
Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.
Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
4 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
3 hours 20 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
25 minutes
Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox
Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
We rely so heavily on the generosity of other in order to continue to offer the services that we do. Every donation goes directly towards providing these and all are so greatly appreciated.
If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
Donate Now
