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  • commented 2017-08-17 19:56:53 +0100
    Hi my name is Jenna, I was born on November 19th 1997 of course with Spina Bifida and water on the Brain so the day after I was born my neurosurgeon had to do Emergency surgery to drain the excess Fluid and so that being said they put in a shunt. Although Living with Spina Bifida isn’t always Easy throughout my 17 surgeries I still smile!😊 Because I know my life could have been a lot worse but I just thank God that it isn’t!🙌🏻🙌🏻
  • commented 2016-06-14 23:01:13 +0100
    Our grandson Matthew Greenhalgh, has been waiting for leg supports for two years, his condition is getting worse by the month, he is in constant pain and his legs are becoming more deformed. Despite his parents pleas, the HSE done absolutely nothing to to alleviate Matthews pain. Matthew suffers a great deal because he has no leg support and every step is painful.

    Will you help?

    Christopher & Esther Greenhalgh
  • commented 2016-01-18 01:41:30 +0000

    My name is Áine Mc Donnell I was born on the 9th of June 1976 my parents were very young and I was their first born and the eldest of five children. I live in Belmullet County Mayo which is a very rural isolated area in the West of Ireland. I live with my parents at the moment but I am hoping in the near future to move into my own purpose built house in my local community.

    I was born in Mayo General Hospital in Castlebar with Spina Bifida and Hydrocephalus and was immediately transferred to Our Lady’s Hospital for Sick Children in Crumlin. I spent many months in Crumlin in that first year undergoing the start of a myriad of surgeries that would be performed throughout my life in fact my parents have told me I had over one hundred surgeries by the time I was three years old. My parents have also told me that my story is a story of survival against the odds.

    My childhood was one of many hospital visits and medical procedures but it was also one of happy memories and the knowledge that I was surrounded by a family who loved and cherished me for who I was and for who I have become, I have parents who always wanted the best for me and encouraged me to be the best I could be. My Dad was a teacher in the local vocational school and my Mum was a nurse. It is because of them and their unwavering support and encouragement that I was educated in the local primary and the vocational school my Father taught in, going on to achieve 5 honours in my Leaving Certificate despite being out for many months due to surgery. School life wasn’t easy and I had to work very hard and had many challenges to face along the way including being bullied for most of my school life because I used a wheelchair but I strongly believe that as the saying goes “What doesn’t kill you makes you stronger”. I had some amazing teachers including my wonderful Dad who encouraged me and brought out my potential I always loved reading and my parents remarked that I was “reading the newspaper” before I could talk.

    I have always had a thirst for knowledge and when I was twelve I found my flair for writing and have been writing since. I attended college first in University of Ulster Coleraine and then in UCD in Dublin these attempts at a college education unfortunately did not work out for me for many reasons, however I am also of the believe that there is a calling for everybody and I finally found mine at the age of thirty eight when I did a Job Shadow in conjunction with Irish Association for Supported Employment and The Irish Wheelchair Association (IWA). I worked for a week in the communications department with Anita Matthews who is Public Relations, Communications & Marketing Coordinator with the Irish Wheelchair Association and I loved every minute of it and it was then I realised I wanted to work in Public Relations, it was because of this week and Anita’s encouragement that I tentatively decided to give further education another go and I enrolled in a Diploma in Public Relations with Event Management, it wasn’t without it’s difficulties and there were many times when I became very discouraged and I honestly thought I would never complete it but I am proud to say that I completed my diploma in December and I hope to undertake a postgraduate in a few months but haven’t quite decided what I will do it in yet. My family and friends and the wonderful teachers and mentors that I have met along my path of life have shown me that with determination and hard work anything can be achieved.

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