info@sbhi.ie 
+353 (0)1 457 2329 
Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
Tomorrow is World Spina Bifida and Hydrocephalus day IFSBH 💙 Join us from 11am - 1pm for a coffee morning at various locations throughout the country 🇮🇪
0 CommentsComment on Facebook
✈️ Introducing the SBHI Hydrocephalus Travel Guide
With the right preparation and information, you can feel more confident when planning your next adventure while managing Hydrocephalus.
Our Hydrocephalus Travel Guide is packed with practical tips to help you prepare for your journey, including:
🩺 Carrying essential medical information.
💊 Planning and packing your medication safely.
🏥 Checking healthcare facilities, insurance and accessibility at your destination.
🛫 Preparing for airport security and requesting special assistance.
🚗 Planning road travel and checking relevant driving guidelines.
📌 Save this post for your next trip and share it with someone who might find it helpful!
For further information or support with planning a journey, contact your SBHI Family Liaison Officer. 💙
#sbhi #hydrocephalus #spinabifida #sbhawarenessweek #awarenessweek #TravelTips #hydrocephalusawareness #TravelWithConfidence
0 CommentsComment on Facebook
🎬 A Day in the Life – Episode 3: An Táin Arts Centre, Dundalk! 🎭
For Episode 3 of our A Day in the Life series, we’re heading to An Táin Arts Centre in Dundalk! ✨
This time, we’re getting a glimpse behind the scenes of life in an arts centre, exploring the different roles, opportunities and experiences involved in both working and volunteering in the arts.
From bringing creativity to the community to helping keep the arts alive, there’s so much more to discover than what happens on stage!
Join us as we continue showcasing the wonderful workplaces, community spaces and opportunities that are out there.
📺 Watch Episode 3 now and discover A Day in the Life at An Táin Arts Centre!
vimeo.com/1235636439?share=copy
#SBHI #WhatWorksForMe #ADayInTheLife #InclusiveEmployment #SpinaBifida #Hydrocephalus #EUinmyregion 🌍🇪🇺🇮🇪 #SeeMyAbilityNotMyDisability #SBHAwarenessWeek
0 CommentsComment on Facebook
We were delighted to have 92.5 Phoenix FM in our Open Opportunity Day service on Tuesday helping us spread awareness during Spina Bifida Hydrocephalus Awareness Week.
They interviewed staff and members to allow listeners to gain a broad view of living with Spina Bifida and/or Hydrocephalus and how SBHI provide various vital services and supports to the Spina Bifida Hydrocephalus Community.
You can listen back to the show here: www.mixcloud.com/925PhoenixFM/d15-today-tuesday-20-10-26-1000-1200/?utm_medium=share&utm_source=s...
#SpinaBifida#Hydrocephalus#awarenessweek#seemyabilitynotmydisability
1 CommentComment on Facebook
It was amazing to interview the staff can't wait for next year 🙂
Spina Bifida Hydrocephalus Awareness Week | #seemyabilitynotmydisability #sbhiawarenessweek
❗Did You Know ❓
Hydrocephalus can develop at any age.
Although it is often diagnosed in babies and children, hydrocephalus can also develop in adults. Causes vary, and symptoms and treatment depend on the individual.
0 CommentsComment on Facebook
**A Day in the Life – Episode 2: Avida Boutique, Ardee!** ✨
Take a look inside the world of retail with us!
In Episode 2 of our 'A Day in the Life' series, our Peer Mentor Mary visits Avida Boutique in Ardee to explore the retail industry and give us an insight into what working in this sector can look like.
From customer service to the day-to-day tasks that keep a shop running, we’re showcasing the different roles, skills and opportunities available in retail. 🛍️
Through this series, we hope to break down barriers, build confidence and help those living with Spina Bifida and/or Hydrocephalus feel more comfortable exploring the world of work. Because everyone deserves the opportunity to discover their potential! 💙
A huge thank you to Avida Boutique for welcoming us and helping us shine a light on the opportunities available in retail!
🎬 **Watch Episode 2 here:
vimeo.com/1235611618?share=copy&fl=sv&fe=ci
#SBHI #WhatWorksForMe #ADayInTheLife #InclusiveEmployment #SpinaBifida #Hydrocephalus #EUinmyregion 🌍🇪🇺🇮🇪 #SeeMyAbilityNotMyDisability #SBHAwarenessWeek
0 CommentsComment on Facebook
💙 A chance meeting, an incredible supporter, and a generosity that means so much! 💙
A few months ago, we had the pleasure of bumping into John Breheny who owns Rosgal Ltd., and little did we know just how much that chance meeting would impact us and the people we support.
Since then, he has been an incredible supporter of our charity, and we were absolutely delighted to welcome him to our Open Opportunities Day Service today, where he very kindly raised €5,000 from an auction of a very special jersey and has donated that towards our respite programme.
During his visit today, he took the time to meet our members, chat with everyone, and even treat some of them to a spin in his beautiful Rolls-Royce! 🚘 The excitement and smiles said it all!
We are truly grateful for his kindness, generosity and, most importantly, the genuine interest he has shown in our members and the work we do. His support will make a real difference to the lives of individuals and families living with spina bifida and/or hydrocephalus.
Thank you John for being such an incredible friend to SBHI and for making our members smile. 💙
2 CommentsComment on Facebook
❤️❤️❤️so great to support this amazing charity
It was lovely to meet John and Tom. Tks for the spin
Spina Bifida Hydrocephalus Awareness Week | #seemyabilitynotmydisability #sbhiawarenessweek
❗Did You Know ❓
Spina bifida develops early in pregnancy.
Spina bifida occurs when the neural tube, which develops into the brain and spinal cord, does not close completely during early pregnancy. It can affect the spine and the nerves connected to it.
0 CommentsComment on Facebook
Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox
Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
We rely so heavily on the generosity of other in order to continue to offer the services that we do. Every donation goes directly towards providing these and all are so greatly appreciated.
If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
Donate Now