info@sbhi.ie 
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Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
Our June Newsletter is now live:
mailchi.mp
Welcome to our June newsletter. As you know, the SBHI AGM was held in the Hodson Bay Hotel in Athlone in the second weekend in May. The Board of Directors of SBHI have asked me to thank you for you...0 CommentsComment on Facebook
Our Annual Sports Day is taking place next month , July 18th from 10am.
We are returning to the wonderful Leixlip Amenities Sports Centre for a day of inclusive sports for all ages and abilities!
If you would like to join us on the day please register by emailing Sharon at sreville@sbhi.ie before June 30th.
0 CommentsComment on Facebook
And that is a wrap on our 2026 AGM Confernece weekend! 🎬Didn’t it absolutely fly by??
We hope all in attendance had a wonderful time 💕 A big thank you to all who hosted breakout sessions, set up information stands, our keynote speaker Emily Larkin from @invisibledisabilityire and to the @hodsonbayhotel for being such great hosts 🙏
9 CommentsComment on Facebook
Thanks very much everyone for all great weekend really had a fantastic time xx
Thank you all for a wonderful weekend 🧡
Thank you so much to all the staff at sbhi and to all the staff at the hodson bay for a fantastic weekend
Some fantastic information stands here all day in the conference hallway! Make sure you stop by each one and say hi! 👋 #sbhiconferenceweekend2026
3 CommentsComment on Facebook
Good luck to everyone taking part today. Apologies I couldn't make it.
Where is this happening and when?
Our Spina Bifida Hydrocephalus Coffee Mornings continue!
As part of our 2026 ‘Making Connections’ initiative, the Family Liaison Team are delighted to invite you to our second coffee morning of the year. There are four coffee mornings organised throughout the year, held in different locations throughout Ireland, offering opportunities to connect and chat in a relaxed atmosphere. Get in touch with your local Family Liaison Officer if you are interested in attending, or have any queries.
The coffee mornings will all be held on Wednesday the 29th of April from 11am - 1 pm in the following locations:
📌Mc William Park Hotel, Claremorris
📌Hodson Bay Hotel, Athlone
📌Gibson Hotel, Dublin
📌The Talbot Hotel, Carlow
📌Kilmore Hotel, Cavan
📌Silver Springs, Cork City
📌Talbot Hotel, Stillorgan
Will you be joining us? We would love to see you there ❤️
1 CommentComment on Facebook
Fingers crossed the city centre one in Dublin, will go ahead! This time 😉
Wishing a warm welcome to Caroline and a best of luck to Jessica ❤️
As our Carlow/Kilkenny/Waterford/Wexford/South Tipperary Family Liaison Officer, Jessica, leaves us for her maternity leave we are delighted to welcome Caroline to the SBHI team to look after her area while she is gone.
Caroline will be hosting the upcoming Coffee morning in the Talbot Hotel, Carlow so it would be a perfect place to meet her for the first time!
> 29th of April from 11am-1pm<
A Little bit about Caroline:
''I'm looking forward to new challenges, working with SBHI members and new colleagues. I've received a really warm welcome from the team so I'm feeling very positive about my new role. Outside of work I'm kept busy running a mammy-taxi service for my four teenage/adult children. I unwind by walking my dogs, Goose and Rosie, along the canal and I love gardening and spending too much time and money in garden centres. I give back a little as a Community First Responder.''
2 CommentsComment on Facebook
Welcome Caroline look forward to meeting you and having a chat We are in the kilkenny area
Hello Caroline Best of luck Jessica kerp us post on the new arrival
Our Spina Bifida Hydrocephalus Coffee Mornings continue!
As part of our 2026 ‘Making Connections’ initiative, the Family Liaison Team are delighted to invite you to our second coffee morning of the year. There are four coffee mornings organised throughout the year, held in different locations throughout Ireland, offering opportunities to connect and chat in a relaxed atmosphere. Get in touch with your local Family Liaison Officer if you are interested in attending, or have any queries.
The coffee mornings will all be held on Wednesday the 29th of April from 11am - 1 pm in the following locations:
📌Mc William Park Hotel, Claremorris
📌Hodson Bay Hotel, Athlone
📌Gibson Hotel, Dublin
📌The Talbot Hotel, Carlow
📌Kilmore Hotel, Cavan
📌Silver Springs, Cork City
📌Talbot Hotel, Stillorgan
Will you be joining us? We would love to see you there ❤️
5 CommentsComment on Facebook
Cannotvwait xxx
Would love a coffee morning to come up the road, Sligo/Donegal
Im interested too but what about kilkenny we use to have them now we dont
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Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
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If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
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