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Welcome to

Spina Bifida Hydrocephalus Ireland

Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle

Our Aim

We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life

Support

We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus

Inclusivity

We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus

Membership

We enable our members to get the very best from health, education, and social services by lobbying the Government

Photos and News

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🎬 Our full A Day in the Life video series is now available on our website! 

Hosted by our Peer Mentor, Mary, our A Day in the Life video series explores a variety of workplaces and career opportunities for people living with Spina Bifida and/or Hydrocephalus. 

Through a series of interviews and workplace visits, we shine a light on different industries, including retail, hospitality, technology, libraries and the arts. The series aims to challenge perceptions, break down barriers to employment and demonstrate the valuable skills, talents and contributions for various roles. By showcasing real working environments and experiences, we hope to inspire confidence and encourage people to explore opportunities that work for them.

📺 Watch the full series on our website here:
👉 https://sbhi.ie/what-works-for-me-programme/

A huge thank you to everyone who took part and helped make this series possible!

#SBHI #WhatWorksForMe #ADayInTheLife #InclusiveEmployment #SpinaBifida #Hydrocephalus #EUinmyregion 🌍🇪🇺🇮🇪 #SeeMyAbilityNotMyDisability

🎬 Our full A Day in the Life video series is now available on our website!

Hosted by our Peer Mentor, Mary, our A Day in the Life video series explores a variety of workplaces and career opportunities for people living with Spina Bifida and/or Hydrocephalus.

Through a series of interviews and workplace visits, we shine a light on different industries, including retail, hospitality, technology, libraries and the arts. The series aims to challenge perceptions, break down barriers to employment and demonstrate the valuable skills, talents and contributions for various roles. By showcasing real working environments and experiences, we hope to inspire confidence and encourage people to explore opportunities that work for them.

📺 Watch the full series on our website here:
👉 sbhi.ie/what-works-for-me-programme/

A huge thank you to everyone who took part and helped make this series possible!

#sbhi #WhatWorksForMe #adayinthelife #InclusiveEmployment #spinabifida #hydrocephalus #EUinmyRegion 🌍🇪🇺🇮🇪 #seemyabilitynotmydisability
... See MoreSee Less

4 hours ago
🏃‍♀️💙GOOD LUCK, #TeamSBHI! 🧡🏃‍♂️

Today, we’re sending the biggest good luck wishes to our incredible Dublin Marathon team — Jay, Finnian, Evie, Zoe, Micheal, Corey, Johnny, Lisa, John and Hayley! 🇮🇪💪

Each of you has taken on an amazing challenge, dedicating your time, energy and determination to supporting Spina Bifida Hydrocephalus Ireland. And what an incredible achievement already — they have collectively raised an amazing €20,200 so far! 👏

Fundraising like this is absolutely vital to the work we do at SBHI. Every euro raised helps us provide essential supports, services and opportunities for individuals and families living with Spina Bifida and/or Hydrocephalus across Ireland. From supporting families through their journeys to providing respite breaks, information and community support, your efforts make a real and lasting difference to people’s lives. 💚

We simply couldn’t do what we do without the generosity, dedication and kindness of people like TEAMSBHI💙. Today, as you take on those 26.2 miles, know that you have an entire community cheering you on and so grateful for everything you’re doing!

Run safe, soak up the atmosphere and be incredibly proud of what you’ve achieved. You’re already making a huge difference before you’ve even crossed that finish line! 🏅💚

GO #TeamSBHI! We’re all behind you! 🥳👏

💚 Want to support #TeamSBHI?

Every donation, big or small, helps us continue providing vital supports and services to the Spina Bifida and Hydrocephalus community across Ireland.

👉 Donate here: https://eventmaster.ie/fundraising/vcampaign/ILDM2026FC-SBHI

Thank you for helping us make a difference! 💚

#TeamSBHI DublinMarathon Fundraising SpinaBifida Hydrocephalus SBHI

🏃‍♀️💙GOOD LUCK, #TeamSBHI! 🧡🏃‍♂️

Today, we’re sending the biggest good luck wishes to our incredible Dublin Marathon team — Jay, Finnian, Evie, Zoe, Micheal, Corey, Johnny, Lisa, John and Hayley! 🇮🇪💪

Each of you has taken on an amazing challenge, dedicating your time, energy and determination to supporting Spina Bifida Hydrocephalus Ireland. And what an incredible achievement already — they have collectively raised an amazing €20,200 so far! 👏

Fundraising like this is absolutely vital to the work we do at SBHI. Every euro raised helps us provide essential supports, services and opportunities for individuals and families living with Spina Bifida and/or Hydrocephalus across Ireland. From supporting families through their journeys to providing respite breaks, information and community support, your efforts make a real and lasting difference to people’s lives. 💚

We simply couldn’t do what we do without the generosity, dedication and kindness of people like TEAMSBHI💙. Today, as you take on those 26.2 miles, know that you have an entire community cheering you on and so grateful for everything you’re doing!

Run safe, soak up the atmosphere and be incredibly proud of what you’ve achieved. You’re already making a huge difference before you’ve even crossed that finish line! 🏅💚

GO #TeamSBHI! We’re all behind you! 🥳👏

💚 Want to support #TeamSBHI?

Every donation, big or small, helps us continue providing vital supports and services to the Spina Bifida and Hydrocephalus community across Ireland.

👉 Donate here: eventmaster.ie/fundraising/vcampaign/ILDM2026FC-SBHI

Thank you for helping us make a difference! 💚

#TeamSBHI DublinMarathon Fundraising SpinaBifida Hydrocephalus SBHI
... See MoreSee Less

1 week ago
🎤🌟 What an incredible day celebrating talent, creativity and ability! 🌟🎨

Today’s talent show was filled with so many wonderful moments, showcasing the amazing talents of people living with Spina Bifida and Hydrocephalus. 💚

From 2 fantastic rap songs, 4 brilliant keyboard performances, 3 talented singers and 2 wonderful Irish dancers, to a concertina performance, beautiful artwork and incredible craft pieces — our members truly showed us that talent comes in so many different forms! 🎹🎶💃🖌️

Every performance and display was a reminder of the importance of celebrating ability, providing opportunities and ensuring everyone has the chance to shine. ✨

We are so proud of everyone who took part today and shared their gifts with us. You are all amazing! 💚

#SBHI #SpinaBifida #Hydrocephalus #seemyabilitynotmydisabilityImage attachmentImage attachment+Image attachment

🎤🌟 What an incredible day celebrating talent, creativity and ability! 🌟🎨

Today’s talent show was filled with so many wonderful moments, showcasing the amazing talents of people living with Spina Bifida and Hydrocephalus. 💚

From 2 fantastic rap songs, 4 brilliant keyboard performances, 3 talented singers and 2 wonderful Irish dancers, to a concertina performance, beautiful artwork and incredible craft pieces — our members truly showed us that talent comes in so many different forms! 🎹🎶💃🖌️

Every performance and display was a reminder of the importance of celebrating ability, providing opportunities and ensuring everyone has the chance to shine. ✨

We are so proud of everyone who took part today and shared their gifts with us. You are all amazing! 💚

#SBHI #SpinaBifida #Hydrocephalus #seemyabilitynotmydisability
... See MoreSee Less

1 week ago

🎤🌟 What an incredible day celebrating talent, creativity and ability! 🌟🎨

Today’s talent show was filled with so many wonderful moments, showcasing the amazing talents of people living with Spina Bifida and Hydrocephalus. 💚

From 2 fantastic rap songs, 4 brilliant keyboard performances, 3 talented singers and 2 wonderful Irish dancers, to a concertina performance, beautiful artwork and incredible craft pieces — our members truly showed us that talent comes in so many different forms! 🎹🎶💃🖌️

Every performance and display was a reminder of the importance of celebrating ability, providing opportunities and ensuring everyone has the chance to shine. ✨

We are so proud of everyone who took part today and shared their gifts with us. You are all amazing! 💚

#SBHI #SpinaBifida #Hydrocephalus #SeeMyAbilityNotMyDisability#SpinaBifidaHydrocephalusAwarenessWeek
... See MoreSee Less

1 week ago
Great turnout in Louth for our coffee morning this morning hosted by our Family Liaison Team 💖

Great turnout in Louth for our coffee morning this morning hosted by our Family Liaison Team 💖 ... See MoreSee Less

2 weeks ago

2 CommentsComment on Facebook

Ah lovely 2 see 🥰 sorry I couldn't make it xxx

Its a pity the Dublin Branch don't really cater for all those of us on the Northside of the city?!

Spina Bifida Hydrocephalus Awareness Week | #SeeMyAbilityNotMyDisability #SBHIAwarenessWeek4

❗Did You Know ❓

A shunt is commonly used to stabilise Hydrocephalus

A shunt is a device that drains excess cerebrospinal fluid from the brain to another part of the body. People with hydrocephalus need long-term monitoring.

Spina Bifida Hydrocephalus Awareness Week | #seemyabilitynotmydisability #sbhiawarenessweek4

❗Did You Know ❓

A shunt is commonly used to stabilise Hydrocephalus

A shunt is a device that drains excess cerebrospinal fluid from the brain to another part of the body. People with hydrocephalus need long-term monitoring.
... See MoreSee Less

2 weeks ago
A Day in the Life – Episode 4: Digiweb!

For Episode 4 of our A Day in the Life series, we’re stepping into the world of technology with Digiweb, where we explore the different roles and opportunities available within the tech industry! 

From customer service to technical support, we’re showcasing how a range of skills, talents and abilities can contribute to a successful career in tech. 💼

This episode highlights that there are opportunities for everyone when workplaces recognise individual strengths and provide the right support. 🙌

A huge thank you to Digiweb for welcoming us and helping us shine a light on inclusive employment! 💙

You can watch episode 4 here :

https://vimeo.com/1235799975?share=copy
#SBHI #WhatWorksForMe #ADayInTheLife #InclusiveEmployment #SpinaBifida #Hydrocephalus #EUinmyregion 🌍🇪🇺🇮🇪 #SeeMyAbilityNotMyDisability #SBHAwarenessWeek

A Day in the Life – Episode 4: Digiweb!

For Episode 4 of our A Day in the Life series, we’re stepping into the world of technology with Digiweb, where we explore the different roles and opportunities available within the tech industry!

From customer service to technical support, we’re showcasing how a range of skills, talents and abilities can contribute to a successful career in tech. 💼

This episode highlights that there are opportunities for everyone when workplaces recognise individual strengths and provide the right support. 🙌

A huge thank you to Digiweb for welcoming us and helping us shine a light on inclusive employment! 💙

You can watch episode 4 here :

vimeo.com/1235799975?share=copy
#SBHI #WhatWorksForMe #ADayInTheLife #InclusiveEmployment #SpinaBifida #Hydrocephalus #EUinmyregion 🌍🇪🇺🇮🇪 #SeeMyAbilityNotMyDisability #SBHAwarenessWeek
... See MoreSee Less

2 weeks ago

Halloween Party

 

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