info@sbhi.ie 
+353 (0)1 457 2329 
Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
🎉The SBHI Open Opportunity Gala Ball is back this Winter! 🎉
We’re delighted to invite you to join us at our SBHI Open Opportunity Service Winter Gala Ball 2026, proudly hosted by our members and staff on 21st November from 5p.m. to late.
Join us for an unforgettable evening celebrating inclusion, community, exchange and connection, with live entertainment from “Who's Eddie”, fantastic raffle prizes, a professional Photo Shoot on the Red Carpet, a Prosecco/Nosecco Reception and plenty of fun and craic!
Come celebrate with us — it’s a night not to be missed!✨ Early booking is recommended to reserve your place and any specific dietary requirement! ✨
📅 Date: 21st November 2026
📍 Venue: Louise Fitzgerald Hotel, Dublin D22 X5N7
🕔 Time: 5:00 PM – late
🎟️ Book your place here:
form.jotform.com/231432665367055
We look forward to welcoming you all and celebrating together.
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Good morning! How much are the tickets please?
Today is World Hydrocephalus Day! @hydroassoc
In this video our members shared some things they wished more people knew about Hydrocephalus 🧠 Soina Bifida Hydrocephalus Ireland is here to look after anyone in Ireland who lives with Hydrocephalus 💕 @ifsbh
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Are you part of the SBHI community and thinking of returning to employment, but need to upskill?
We have funds to support with that!
If you are currently unemployed, thinking of returning to employment and looking to upskill or retrain, we have a limited fund available to support you with affording course costs.
All you need to do is contact Claire Mc Cormack at 0871364532 or cmccormack@sbhi.ie
Grant funded by "Energy for Generations" ESB Ireland.
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Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox
Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
We rely so heavily on the generosity of other in order to continue to offer the services that we do. Every donation goes directly towards providing these and all are so greatly appreciated.
If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
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