info@sbhi.ie 
+353 (0)1 457 2329 
Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
**A Day in the Life – Episode 2: Avida Boutique, Ardee!** ✨
Take a look inside the world of retail with us!
In Episode 2 of our 'A Day in the Life' series, our Peer Mentor Mary visits Avida Boutique in Ardee to explore the retail industry and give us an insight into what working in this sector can look like.
From customer service to the day-to-day tasks that keep a shop running, we’re showcasing the different roles, skills and opportunities available in retail. 🛍️
Through this series, we hope to break down barriers, build confidence and help those living with Spina Bifida and/or Hydrocephalus feel more comfortable exploring the world of work. Because everyone deserves the opportunity to discover their potential! 💙
A huge thank you to Avida Boutique for welcoming us and helping us shine a light on the opportunities available in retail!
🎬 **Watch Episode 2 here:
vimeo.com/1235611618?share=copy&fl=sv&fe=ci
#SBHI #WhatWorksForMe #ADayInTheLife #InclusiveEmployment #SpinaBifida #Hydrocephalus #EUinmyregion 🌍🇪🇺🇮🇪 #SeeMyAbilityNotMyDisability #SBHAwarenessWeek
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💙 A chance meeting, an incredible supporter, and a generosity that means so much! 💙
A few months ago, we had the pleasure of bumping into John Breheny who owns Rosgal Ltd., and little did we know just how much that chance meeting would impact us and the people we support.
Since then, he has been an incredible supporter of our charity, and we were absolutely delighted to welcome him to our Open Opportunities Day Service today, where he very kindly raised €5,000 from an auction of a very special jersey and has donated that towards our respite programme.
During his visit today, he took the time to meet our members, chat with everyone, and even treat some of them to a spin in his beautiful Rolls-Royce! 🚘 The excitement and smiles said it all!
We are truly grateful for his kindness, generosity and, most importantly, the genuine interest he has shown in our members and the work we do. His support will make a real difference to the lives of individuals and families living with spina bifida and/or hydrocephalus.
Thank you John for being such an incredible friend to SBHI and for making our members smile. 💙
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It was lovely to meet John and Tom. Tks for the spin
Spina Bifida Hydrocephalus Awareness Week | #seemyabilitynotmydisability #sbhiawarenessweek
❗Did You Know ❓
Spina bifida develops early in pregnancy.
Spina bifida occurs when the neural tube, which develops into the brain and spinal cord, does not close completely during early pregnancy. It can affect the spine and the nerves connected to it.
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🎬 Introducing our Spina Bifida Hydrocephalus Awareness Week video series: A Day in the Life!
As part of our What Works for Me programme, we’re delighted to introduce A Day in the Life — a new six-part video series hosted by our Peer Mentor, Mary! 💙
Through a series of interviews with people working across different industries, from libraries and retail to hospitality and technology, we’re exploring what working life really looks like.
🎯 Our aim? To break down barriers, challenge assumptions and help you, our members feel more confident about entering the workplace. By hearing real experiences and getting an insight into different working environments and roles , we hope to show that there are many different paths to finding work that works for you!
📍 Episode 1: Ardee Library
We’re kicking off the series at Ardee Library, where we take a closer look at working in a library, hear about the day-to-day responsibilities involved and explore what a career in this environment can look like.
Whether you’re exploring career options, thinking about returning to work or simply curious about different industries, this series is for you!
▶️ Watch Episode 1 here: vimeo.com/1235108531?share=copy
#SBHI #WhatWorksForMe #ADayInTheLife #InclusiveEmployment #SpinaBifida #Hydrocephalus #EUinmyregion 🌍🇪🇺🇮🇪 #SeeMyAbilityNotMyDisability #SBHAwarenessWeek
2 CommentsComment on Facebook
Congratulations 👏👏👏well done Mary on your interviews xx
Thanks Tracy O'Neill
An incredible story about an incredible family 💙 Best of luck to Michael, and his team who are running this Sunday - we will be cheering you all on from the side-lines 👏❤️ Every step for Luca! 🏃♂️
Kilkenny dad Mikey McDonald is taking on the Dublin Marathon this weekend for a cause incredibly close to his heart – his three-year-old son Luca, who was born with Spina Bifida.
Inspired by Luca's incredible strength, determination and infectious smile, Mikey is hoping to raise vital funds for Spina Bifida Hydrocephalus Ireland, while highlighting the challenges faced by families of children with disabilities.
📰 Read Mikey and Luca's inspiring story below and find out how you can support his fundraising efforts!
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What a beautiful morning at our annual Spina Bifida Hydrocephalus Remembrance Day 💕 We shared stories, tears and smiles while remembering those we have lost 💖 #spinabifida #hydrocephalus #sbhawarenessweek
5 CommentsComment on Facebook
Absolutely beautiful ♥️
Hi I'm sorry I missed this I don't know if any of yous remember my little sister rosaleen Carey she went to that school
Beautiful 🙏
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Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
We rely so heavily on the generosity of other in order to continue to offer the services that we do. Every donation goes directly towards providing these and all are so greatly appreciated.
If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
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