Family Support Team

Family Support

Our Family Support Service has been in existence since 2003. We have a network of workers who provide services nationally to individuals with spina bifida and/or hydrocephalus, their families and carers.

The aim of the service is to work with our members, their families and carers, by providing guidance and information in an environment which is conducive to their needs.

The Family Support Worker (FSW) will visit individuals and/or families in their own home, in hospital, in school or in the work place. The nature and delivery of our service is a direct response to the needs of our members, their families and carers. We provide information, support and guidance from the time of diagnosis, which can occur during pregnancy or at the time of birth, through to adulthood.

We provide healthcare professionals, education professionals and those working within the Disability sector with information, resources and guidance, ensuring that our members receive the best possible provisions from their multidisciplinary team.

The role of the FSW

The role of the FSW is very diverse and is guided by the needs of our members, their families and carers. Our aim is to work with our members, their families and carers by providing guidance, advocacy, emotional and practical support.

Sometimes all that our members need is someone to listen to them. This is an essential part of the Family Support Workers' role. We are a confidential*, non-judgemental and respectful service bound by the Data Protection Acts 1998 and 2003.

There are Family Support Workers throughout the country. Please contact the National Resource Centre who will put you in touch with the FSW in your area.

*Confidentiality will not be breached unless a person (service user or otherwise) is deemed to be at risk of or discloses an allegation of sexual abuse, self-harm, suicidal intention or criminal activity. SBHI staff are bound by a duty of care to report such allegations.

Who we are

The Family Support Team has people from nursing, education, and social care backgrounds. Our team can assist you by providing information and support on medical matters, youth development, education, continence management, mobility, independent/supportive living, relationships and sexuality, entitlements, employment, advocacy and outreach services.


Jessica Roche - Family Support Team Manager / 087 606 6558


Aine Harrington (Mayo/Leitrim/Roscommon/Sligo/Galway) / 087 939 5371

Paige Parker (Cavan/Monaghan/Louth/Meath/North County Dublin) / 086 819 4790

Catherine Flynn (Dublin - odd number postcodes/Kildare) / 087 742 2543 

Jane Mullane (Waterford/Wexford/South Tipperary/Carlow/Kilkenny) / 087 652 7175

Amy Doherty (Dublin - even number postcodes/South County Dublin/Wicklow) / 087 2209625

Please contact our National Resource Centre directly - 01 457 23 29

Sarah Jacobsen (Westmeath/Longford/Laois/Offaly) / 085 711 9062

Patricia Leahy (Cork, Kerry) / 086 819 4791


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