In 1968 a small group of parents whose children had spina bifida and/or hydrocephalus established a voluntary organisation which would highlight awareness of these two conditions and support families, individuals and carers who were affected. Their determination and dedication resulted in the establishment of The Irish Association for Spina Bifida & Hydrocephalus (IASBAH). The association was formed by parents who were committed to taking action to improve the prospects of people who were living with spina bifida and/or hydrocephalus in Ireland.

These parents were pioneers who laid the foundations for what is now a nationally recognised organisation. Their optimistic spirit encouraged them to affect real change for people who had the conditions, their families and carers.

In April 2008 the National Association of Spina Bifida Hydrocephalus Ireland Ltd was formed, and trades as Spina Bifida Hydrocephalus Ireland (SBHI).


Spina Bifida Hydrocephalus Ireland continues its tradition as a voluntary organisation, with an elected Board of Directors made up of voluntary members and parents as well as branches in all four provinces which are run by groups of local volunteers. The association has thousands of members nationwide consisting of, those with spina bifida and/or hydrocephalus, their parents, siblings, family, friends and carers. The biggest strength of the association continues to be its members and volunteers. Our members have a wealth of knowledge and experience which is invaluable to the association and its future development.

With the assistance of Government funding and support from the HSE the association has expanded its services nationally. As a result The National Resource Centre is now a professionally run centre, which employs a CEO, a Family Support Team, a Respite and Recreation Team, an Educational Officer, a Fundraising Officer as well as administration support.

In 2008 the association became an affiliated member of the International Federation for Spina Bifida and Hydrocephalus (IF). We now have a representative from the Board of Directors sitting on the committee for IF (www.ifglobal.org).

The association continues to evolve and is now an active body where paid and voluntary staff work together to support its members as proactively and effectively as possible.

Our Torc Logo

The Torc logo was launched in May 2003 and brought about a new corporate identity to the association. The concept of developing a logo to identify the association was based on the idea of incorporating the human figure. The logo features two people facing in co-operation and mutual support. Its message is interdependence - i.e. the interdependence between the association and the people it supports. 

Today the Torc is the identifying symbol of Spina Bifida Hydrocephalus Ireland, recognised throughout the country and internationally as a sign of how the association has evolved into a truly interdependent organisation.


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