The information on this website does not constitute medical advice for any individual. As specific cases may vary from the general information presented here, SBHI advises readers to consult a qualified medical or other professional on an individual basis.
‘Hand in Hand’
Firstly, if your baby has arrived, we at Spina Bifida Hydrocephalus Ireland (SBHI) would like to congratulate you on your new child. If, on the other hand, you are awaiting the arrival of your baby, we are here to support you through each step of the way.
You have just been told that your baby has spina bifida and/or hydrocephalus and you may or will experience various different thoughts and feelings. Remember every baby born is an individual; if you already have children, you will know that they are all different, from their hair colouring, their personality, and their abilities. So too are all children with spina bifida and/or hydrocephalus, we never compare one with another.
You are going to learn a lot of information over the next days, weeks, and months. You will have questions that many people cannot answer until after your baby is born. However, please know there are many people out there to support you.
Sometimes parents starting out seem to get caught up in the medical world and they can miss out on the pleasure that their baby brings. Your baby's needs are the exact same as every other, so enjoy every moment.
Some of you will have already met your Family Support Worker (FSW) and they will continue to assist you now that your baby is born. For those parents awaiting the arrival of your baby, we welcome your calls. We provide telephone support, practical and emotional support at home, or at hospital, as well as information leaflets. You are in a new situation and will hear lots of medical terminology and we will interpret any information that is not clear to you.