SBHI Launches First Awareness Week in Ireland for 2016

The aim of World Spina Bifida and Hydrocephalus Day (Tuesday, 25th October 2016) is to raise awareness and understanding, and to advocate and promote the rights of persons with these conditions.

SBHI is celebrating World Spina Bifida and Hydrocephalus awareness, not just for one day, but for a whole week.

For each of the seven days of SBHI's Spina Bifida and Hydrocephalus Awareness Week (Monday to Sunday, 24th to 30th October), we will publish a member’s story on our website ( Then on Facebook and Twitter, we will encourage you to both read the member’s story, and to share your story as well.

Seven of our members and their parents, of all ages, from babies to young children, from teenagers to young and mature adults, have graciously and generously shared their experiences of adversity, strength, courage, and determination.

They are doing so in the hope that the shared human experience of their lives will help to educate the public about the conditions and to show other members that you are not alone - that we are united, as one community, by Spina Bifida and Hydrocephalus.

One, or all, of the seven stories being shared by our members may resonate with you and your life now, or how it was when you were their age. If you like and connect with the SBHI Awareness Week stories, we encourage you to share them, and to share your experiences, using the hashtag: #WhatsYourStory?

Are you all ready to take part in SBHI Awareness Week? Great! So what will be your story? Get ready to share and don’t forget to use the hashtag: #WhatsYourStory?

Other hashtags you can use include:  #SpinaBifida #Hydrocephalus #sbhi #unityindiversity

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