Hydrocephalus - A Healthcare Transition Guide for Teens and Young Adults
In recent years, the majority of children with chronic medical conditions, including hydrocephalus, have been receiving their medical care in a paediatric-centred environment. Realistically, paediatric-focused neurological care ends at 16, and ready or not, the challenges can be considerable if transition plans have not been put into place.
The goal for all children, whether or not they have a chronic medical condition or a disability, should be to move progressively from dependence toward independence, gathering life skills that promote healthy self-esteem and self-sufficiency. All children need to be encouraged to develop attitudes, skills, and knowledge that empower them to control, as much as possible, their own destiny.
As your parents encourage your move to independence, they must be willing to let go of their control, allowing you to make mistakes and encouraging you to use problem-solving skills to cope with challenges. Fostering opportunities, even at a very young age, to develop self-confidence, self-esteem, and feelings of value by others, determination and a positive outlook will ease your way, preparing you for your transition to adulthood and a more independent lifestyle.
Teen Talk - Friends and Relationships
We all have different personalities; you may be a party person with lots of friends and good at chat, or maybe you're a quiet sort of person who likes your own company or feels happier doing things with family than being out with your classmates.
Making friends might be harder because of some of the things that have happened in your life.
Some people with hydrocephalus find it hard to imagine how their friends tick and feel a bit different. Having a disability might make you feel different, shy, or withdrawn; or you might feel angry.
To read and print the full document Teen Talk - Friends and Relationships click here
Teen Talk - Bullying
Bullying can be a problem for lots of young people but especially for those of you who have a disability or have some learning difficulties.
Bullies target their victims for many reasons such as weight, appearance, intelligence, disability, sexuality, religion, or culture. Some may have had people make comments on the shape of your body or how you walk. You may have had people try to tip your wheelchair, or move you in it without asking your permission first.
To read and print the full document Teen Talk - Bullying click here
Teen Talk - Keeping Safe
Travelling on foot or by wheelchair is generally considered a safe means of travel, but the risks will obviously increase during hours of darkness and during winter months.
USE YOUR COMMON SENSE - JUST THINK, ‘SAFETY FIRST’!
To read and print the full document Teen Talk - Keeping Safe click here
Teen Talk - Information for Boys and Information for Girls
Before you left primary school, you will have had a talk explaining the changes in your body that take place over a few years. You'll know that, along with the changes in your body, there are often changes in how you feel. Maybe your mood will change suddenly from happy to sad, or you'll lose your temper and make everyone else’s life a misery, or you might stop being a chatty sort of person and turn into someone quiet who wants to be shut away in the bedroom listening to music and who grunts instead of talks.
For more information about the changes you may be experiencing and how to cope, please see:
Teen Talk - Information for Boys click here
Teen Talk - Information for Girls Click here